The Comprehensive Sickle Cell Center at Cincinnati Children’s Hospital Medical Center encourages families to take advantage of the following resources.
Parent Support Group
A parent support group is held at Cincinnati Children’s on the third Tuesday evening of each month (except December). For more information, families can contact social workers Cheryl Blair at 513-636-8315 or Lisa Leace at 513-636-1747.
CarePages is a free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Families Share Stories of Hope
At Cincinnati Children’s, we understand that it is helpful and reassuring to hear stories from families in similar situations. Read stories from other families.
The Comprehensive Sickle Cell Center publishes the Center Talk newsletter twice a year to provide information to families about events, new personnel and educational articles about treatment, research studies and other important issues.
National Education, Advocacy and Support Resources
Family Support Network at Cincinnati Children’s
Our Family Support Network includes specialists from Child Life, Financial Services, Pastoral Care, the School Intervention Program and Social Work. These specialists can provide:
- Emotional, psychosocial and spiritual support
- Assistance with schooling concerns
- Information about additional resources (financial, insurance, community)
Guest Services at Cincinnati Children’s helps make a stay in Cincinnati more comfortable and convenient for out-of-town patients and families. The Guest Services team provides assistance with lodging, ground transportation and other concerns.
Hem / Onc Kids Camp
The Cancer and Blood Diseases Institute at Cincinnati Children’s hosts a week-long summer camp every year. “Hem / Onc Kids Camp” takes place at Joy Outdoor Education Center in Clarksville, OH. The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities. The camp is an opportunity for kids ages 7-16 to develop new skills, form lasting friendships and build their self-esteem, all while having a great time. Patients are encouraged to bring a sibling.