A photo of Ellen Lipstein.

Ellen A. Lipstein, MD, MPH

  • Physician, James M. Anderson Center for Health Systems Excellence
  • Associate Professor, UC Department of Pediatrics



I pursued a career in general pediatrics to allow me to treat the whole child. I enjoy collaborating with families to support their children living healthy lives and reaching their full potential.

I am interested in understanding and improving the ways parents and patients with chronic conditions collaborate with healthcare providers to make treatment decisions. By better understanding how parents and patients experience the decision process, we can develop ways to improve that process, and in turn, improve children’s health outcomes. Specifically, my research is focused on shared decision making and how it can be used to engage parents, children and adolescents with chronic conditions in their care.

My current program of research uses both qualitative and quantitative methods to answer questions about how decisions are made, what help families need in making decisions and how healthcare providers can better support families’ decision making. Additionally, our team is involved in the development and testing of interventions aimed at addressing the decision-making challenges revealed by our research.

My ultimate goal is to improve outcomes for children with chronic conditions through ensuring decision-making processes that align the medical evidence with families’ goals and preferences related to their child’s health.

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Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis. Matula, KA; Minar, P; Daraiseh, NM; Lin, L; Recker, M; Lipstein, EA. Health Expectations. 2022.

Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions. Valentine, KD; Lipstein, EA; Vo, H; Cosenza, C; Barry, MJ; Sepucha, K. Ambulatory Pediatrics. 2022.

iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis. Daraiseh, NM; Black, A; Minar, P; Meisman, A; Saxe, M; Lipstein, EA. Patient Education and Counseling. 2022; 105:1628-1633.

Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention. Lipstein, EA; Brinkman, WB; Zhang, Y; Hommel, KA; Ittenbach, RF; Liu, C; Denson, LA. Patient Education and Counseling. 2022; 105:1075-1081.

Providers' Perspectives on Decision-Making About Care for Transgender Youth. Terrizzi, BF; Lambert, AS; Conard, LA E; Vaughn, LM; Lipstein, EL. 2022.

Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review. Lambert, A; Pratt, A; Conard, LA E; Grigg Dean, E; Page, E; Vaughn, LM; Lipstein, EA. 2022.

Integrating shared decision making into trial consent: A nested, cluster-randomized trial. Lipstein, EA; Breslin, M; Dodds, CM; Kappelman, MD; Ollberding, NJ; Margolis, P; Xu, Y; Brinkman, WB. Patient Education and Counseling. 2021; 104:1575-1582.

Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making. Lin, JL; Lipstein, EA; Wittenberg, E; Tay, D; Lundstrom, R; Lundstrom, GL; Sediqzadah, S; Wright, DR. MDM Policy and Practice. 2021; 6.

Use of language in the medical decision-making process for biologic therapy: Youth and parent perspectives. David, JG; Daly, BP; Chute, D; Katz-Buonincontro, J; Clemente, I; Lipstein, EA. Child: Care, Health and Development. 2021; 47:208-217.

The Gray Zone: Adolescent and Young Adult Decision Support Needs for Ulcerative Colitis. Meisman, A; Daraiseh, NM; Minar, P; Saxe, M; Lipstein, EA. MDM Policy and Practice. 2020; 5.

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