A photo of Ellen Lipstein.

Ellen A. Lipstein, MD, MPH


  • Co-Director of Research, James M. Anderson Center for Health Systems Excellence
  • Professor, UC Department of Pediatrics

About

Biography

I pursued a career in general pediatrics to allow me to treat the whole child. I enjoy collaborating with families to support their children living healthy lives and reaching their full potential.

I am interested in understanding and improving the ways parents and patients with chronic conditions collaborate with healthcare providers to make treatment decisions. By better understanding how parents and patients experience the decision process, we can develop ways to improve that process, and in turn, improve children’s health outcomes. Specifically, my research is focused on shared decision making and how it can be used to engage parents, children and adolescents with chronic conditions in their care.

My current program of research uses both qualitative and quantitative methods to answer questions about how decisions are made, what help families need in making decisions and how healthcare providers can better support families’ decision making. Additionally, our team is involved in the development and testing of interventions aimed at addressing the decision-making challenges revealed by our research.

My ultimate goal is to improve outcomes for children with chronic conditions through ensuring decision-making processes that align the medical evidence with families’ goals and preferences related to their child’s health.

MD: University of Pittsburgh, Pittsburgh, PA, 2003.

Residency: Seattle Children’s Hospital, University of Washington, Seattle, WA, 2006.

Chief Residency: Seattle Children’s Hospital, University of Washington, Seattle, WA, 2007.

Fellowship: Harvard Pediatric Health Services Research Fellowship, MassGeneral Hospital for Children, Boston, MA, 2009.

MPH: Harvard School of Public Health, Boston, MA, 2009.

Certification: Pediatrics, 2007.

Interests

Primary care; chronic disease care

Services and Specialties

Primary Care, Adolescent Medicine

Interests

Involvement of parents and patients in medical decision making; decision making in chronic conditions; health services research

Research Areas

Quality Improvement

Insurance Information

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Publications

Patient Preferences in Diagnostic Imaging: A Scoping Review. Baird, TA; Wright, DR; Britto, MT; Lipstein, EA; Trout, AT; Hayatghaibi, SE. The Patient: Patient Centered Outcomes Research. 2023; 16:579-591.

Adolescents' and Parents' Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research. Matula, KA; Blumling, AA; Myers, MF; McGowan, ML; Lipstein, EA. Journal of Empirical Research on Human Research Ethics. 2023; 18:278-283.

Can Sharing Improve Caring? A Call to Prioritize Shared Decision Making in Pediatric Pain Management. MacKenzie, NE; Tutelman, PR; Chambers, CT; Parker, JA; Boland, L; Lipstein, EA; Jordan, I; Jordan, Z; Finley, GA; Toupin April, K; et al. Clinical Practice in Pediatric Psychology. 2023; 11:253-261.

Providers' Perspectives on Decision-Making About Care for Transgender Youth. Terrizzi, BF; Lambert, AS; Conard, LA E; Vaughn, LM; Lipstein, EL. 2023; 8:337-343.

Comparative Effectiveness of Anti-TNF in Combination With Low-Dose Methotrexate vs Anti-TNF Monotherapy in Pediatric Crohn's Disease: A Pragmatic Randomized Trial. Kappelman, MD; Wohl, DA; Herfarth, HH; Firestine, AM; Adler, J; Ammoury, RF; Aronow, JE; Bass, DM; Bass, JA; Benkov, K; et al. Gastroenterology. 2023; 165:149-161.e7.

Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review. Lambert, A; Pratt, A; Conard, LA E; Grigg Dean, E; Page, E; Vaughn, LM; Lipstein, EA. 2023; 8:113-123.

Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment. Mazzola, A; Vaughn, LM; Chelvakumar, G; Conard, LA E; Fortenberry, DJ; Voss, RV; Lipstein, EA. Journal of Adolescent Health. 2023; 72:452-459.

P695: Adolescents’ state anxiety and decisional regret one week after learning carrier results for autosomal recessive disorders. Prows, C; McGowan, M; Blumling, A; Brinkman, W; Childers-Buschle, K; Dufendach, K; Lipstein, E; Myers, M. 2023; 1:100767.

Developing video education materials for the return of genomic test results to parents and adolescents. Lynch, JA; Idleburg, MJ; Butsch Kovacic, M; Childers-Buschle, KE; Dufendach, KR; Lipstein, EA; McGowan, ML; Myers, MF; Prows, CA. PEC Innovation. 2022; 1:100051.

Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis. Matula, KA; Minar, P; Daraiseh, NM; Lin, L; Recker, M; Lipstein, EA. Health Expectations. 2022; 25:3105-3113.

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4.6
Overall Patient Rating