We care for people with MGD as a team of specialists working together. Our team has specialists in endocrinology, gynecology, urology, psychology, genetics and ethics. We work with patients and families to make a personal treatment plan based on each patient’s needs. Our team will talk about treatment options and help patients and families make informed decisions for their / their child’s ongoing care. We will provide emotional and psychological support to help patients and families have the best quality of life. We try to let patients and families know what to expect and provide resources to help with the challenges ahead.
Having a chronic condition such as MGD can affect a person’s sense of well-being and can cause stress to family members. Our psychologist and social worker help patients and families identify and address areas of concern. We help families think about how to share information with loved ones about the diagnosis and how to find community resources. Our psychologist meets with children from a young age, through adulthood. Our goal is to ensure they develop a healthy sense of self and feel comfortable with their gender. Also, the psychologist will address any mental health concerns that may be present.
Children with MGD need routine checks to monitor their growth and development, and their overall health. They may need blood tests to check their hormone levels. Girls with MGD may need treatment with estrogen at puberty. Treatment with estrogen will promote breast and sexual development, overall growth and strong bones. Boys with MGD may or may not need hormone treatment, depending on if they make enough testosterone.
Most children with MGD do not need surgery at birth for medical reasons. If a child has an underdeveloped, streak gonad, it may need to be removed to prevent future cancer. If a boy has an undescended testicle, it may need to be moved down into the scrotum. The need for additional surgeries can be discussed with the medical team as needed.