Youngest Hemophilia Patient to Self-Infuse Grows Up
Severe hemophilia A, as 16-year-old Drew Barry describes it, has meant a life of "not being a daredevil." People such as social worker Polly Partin-Welch have been by his side at Cincinnati Children's for years to help him manage his rare bleeding disorder. Today, Drew is a junior counselor at the summer camp that helps connect kids who have cancer and blood diseases. Welch says patients such as Drew teach her how to live: "which is today," she says. "It's the only day we have."