A photo of Susan Wiley.

Director, Division of Developmental and Behavioral Pediatrics

Director, Thomas Center for Down Syndrome

Co-Director, CHARGE Program

Professor, UC Department of PediatricsUC Department of Otolaryngology, Head & Neck Surgery

513-636-4611

513-636-3800

Board Certified

My Biography & Research

Biography

As a developmental pediatrician, I specialize in treating children with developmental disabilities, particularly Down syndrome and Rubinstein Taybi-Syndrome. I also treat children who are deaf or hard of hearing along with developmental disabilities (Deaf/Hard of Hearing Plus).

When I was in college, I worked at a camp for adults with disabilities where the main focus was on having fun rather than therapeutic goals. This experience profoundly affected me – I got back so much more than I gave – and I seriously considered going into special education. After a time as a teacher’s aide, I decided to return to my prior goal of studying medicine. During a rotation in developmental pediatrics, I had an “ah-ha” moment. I knew that this was the field for me.

My care philosophy centers around building a relationship with my patient and their family. I always start my visits by directly communicating with your child. I do this to get a sense of their personality, their strengths and what they uniquely contribute to the world. I love working with families and learning from them strategies for helping their child be the best they can be.

At Cincinnati Children’s, we recognize that children may have difficulties when they come to our offices, and we try to support them throughout their visits. We have child life specialists, nurses and medical assistants who listen to you to understand how to make the visit go as smoothly as possible.

Our team at Developmental Disabilities and Behavioral Pediatrics includes psychologists, speech-language pathologists, occupational therapists, physical therapists, nutritionists, social workers, physicians and advanced practice nurses. This multidisciplinary approach allows for a broader understanding and better expertise to help your child meet their full potential.

I am the clinical director of the Thomas Center for Down Syndrome at Cincinnati Children’s. I have also worked extensively with programs that support children who are deaf or hard of hearing. These include the National American Academy of Pediatrics, the Ohio Department of Health Early Hearing Detection and Intervention Program, the Ohio Center for Deaf-Blind Education and the Outreach Center for Deafness and Blindness in the Ohio Center for Low Incidence.

In addition to seeing patients, I conduct research that seeks to improve the quality of life for children with developmental disabilities. I work with an amazing team of scientists who are trying to determine if a technology-supported language intervention can help fill the language gap in children who are deaf or hard of hearing. We have also focused on the language and functional needs of children who are Deaf/Hard of Hearing Plus.

My research colleagues and I participate in many cross-departmental studies within the Thomas Center for Down Syndrome. These studies have focused on sleep, developmental outcomes for children who have Down syndrome with cardiac conditions and understanding the best use of medication for mental health conditions.

During my career, I am humbled to have received the Seaver Vision Award from Hands and Voices, as well as the Jefferson Awards Champion for Community Service and Volunteerism.

When I’m not helping patients or doing research, I love spending time with my family and gardening.

Clinical Interests

Children who are deaf/hard of hearing; children with genetic syndromes including Rubinstein Taybi Syndrome, Down syndrome, and CHARGE syndrome.

Research Interests

Children who are deaf/hard of hearing; children with Down syndrome

Academic Affiliation

Professor, UC Department of PediatricsUC Department of Otolaryngology, Head & Neck Surgery

Divisions

Developmental and Behavioral Pediatrics, Cochlear Implant, Ear and Hearing, Down Syndrome, Apraxia, Upper Airway, CHARGE Syndrome, Developmental and Behavioral Pediatrics

My Locations

My Education

MD: University of Cincinnati, Cincinnati, OH, 1994.

Residency: Pediatrics, University of Cincinnati, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 1997.

Fellowship: Cincinnati Center for Developmental Disorders, Cincinnati, OH, 2000.

Certification: Pediatrics, 1997; Developmental and Behavioral Pediatrics, 2002.

My Publications

Emergency department utilization among pediatric spina bifida patients. Riddle, S; Meinzen-Derr, J; Tabangin, M; Woodward, J; Wiley, S. Journal of Pediatric Rehabilitation Medicine. 2019; 12:375-381.

Enhancing language in children who are deaf/hard-of-hearing using augmentative and alternative communication technology strategies. Meinzen-Derr, J; Sheldon, RM; Henry, S; Grether, SM; Smith, LE; Mays, L; Riddle, I; Altaye, M; Wiley, S. International Journal of Pediatric Otorhinolaryngology. 2019; 125:23-31.

Adherence to Guidelines for Screening Polysomnography in Children with Down Syndrome. Knollman, PD; Heubi, CH; Meinzen-Derr, J; Smith, DF; Shott, SR; Wiley, S; Ishman, SL. Otolaryngology - Head and Neck Surgery. 2019; 161:157-163.

Development of a State-Wide Database of Early Intervention and Educational Outcomes for Children who are Deaf/Hard of Hearing. Folger, AT; Wiley, S; Van Horn, A; Grove, W; DeDino, N; Minter-Mohr, M; Sa, T; Meinzen-Derr, J. 2019; 4:28-35.

Treating the whole child: When hearing loss and ASD co-occur how can hearing, speech and medical professionals ensure dually diagnosed children access the support they need?. Wiley, S. ASHA leader / American Speech-Language-Hearing Association. 2018; 23:18-19.

Common Use of Stimulants and Alpha-2 Agonists to Treat Preschool Attention-Deficit Hyperactivity Disorder: A DBPNet Study. Blum, NJ; Shults, J; Harstad, E; Wiley, S; Augustyn, M; Meinzen-Derr, JK; Wolraich, ML; Barbaresi, WJ. Journal of Developmental and Behavioral Pediatrics. 2018; 39:531-537.

Understanding the Needs of Families of Children Who Are Deaf/Hard of Hearing with an Autism Spectrum Disorder. Wiley, S; Meinzen-Derr, J; Hunter, L; Hudock, R; Murphy, D; Bentley, K; Williams, T. Journal of the American Academy of Audiology. 2018; 29:378-388.

Language Underperformance in Young Children Who Are Deaf or Hard-of-Hearing: Are the Expectations Too Low?. Meinzen-Derr, J; Sheldon, R; Grether, S; Altaye, M; Smith, L; Choo, DI; Wiley, S. Journal of Developmental and Behavioral Pediatrics. 2018; 39:116-125.

Technology-assisted language intervention for children who are deaf or hard-of-hearing; a pilot study of augmentative and alternative communication for enhancing language development. Meinzen-Derr, J; Wiley, S; McAuley, R; Smith, L; Grether, S. Disability and Rehabilitation: Assistive Technology. 2017; 12:808-815.

Update: Interim guidance for the diagnosis, evaluation, and management of infants with possible congenital zika virus infection - United States, October 2017. Adebanjo, T; Godfred-Cato, S; Viens, L; Fischer, M; Staples, JE; Kuhnert-Tallman, W; Walke, H; Oduyebo, T; Polen, K; Peacock, G; et al. Morbidity and Mortality Weekly Report. 2017; 66:1089-1099.