Twelve-year-old Shane DiGiovanna has never gone a day in his life without bandages. He was born with a rare skin condition known as EB, or epidermolysis bullosa
, which means his skin is so fragile just touching it could break it. "It's very unusual, it's very painful, and there is no cure," says his mom, Patsy DiGiovanna, who searched the country for experts to care for her son. The family relocated to Cincinnati recently so Shane can be treated by specialists such as dermatologist Anne Lucky, MD, an expert on the disorder. Listen to Shane and his mother, Patsy talk about the journey in this "Tell Me a Story."