Family of Boy with Krabbé Disease Takes Life a Day at a Time
When Elias Wendland arrived in 2007, his family celebrated the birth of a healthy baby boy, completing their family of five. But when he turned 5 months old, they began to notice something off about his development. He wasn't feeding himself anymore. He wasn't making much progress at all. When they took him to a neurologist, doctors told the Wendlands something devastating. Elias had Krabbé disease, a rare type of leukodystrophy that would destroy his brain cells. The family learned about hospice, about hanging on, and about a kind of life and love they never expected.
A devastating leukodystrophy called Krabbé disease has taught one family about hospice, about hanging on, and about a love they never expected.