Projects
This study examines the experiences of youth and teens receiving medical care for sickle cell disease including any negative perceptions they may experience. We will also examine their experiences with pain and other adverse life experiences. Study results will help us better understand factors that may affect their care and identify ways to improve support and treatment.
Project Details:
- Collaborators: Multidisciplinary team with psychologists, hematologists, primary care physicians and staff
- Funding: University of Cincinnati and Children’s Hospital Medical Center
The objective of the project is to determine the feasibility and acceptability of SCThrive, a self-management intervention, and to evaluate its efficacy for increasing behavioral activation in adolescents with sickle cell disease.
Project Details:
- More Information: Learn more about the SCThrive study.
- Collaborators: Individuals living with sickle cell disease and their clinicians worked together on this study.
- Funding: National Institutes of Health
This national initiative works to make emotional health support a routine part of care for children, adolescents, and young adults with chronic conditions and their families.
Project Details:
- More Information: Learn more about the Roadmap For Emotional Health.
- Collaborators: American Board of Pediatrics, Cincinnati Children’s Anderson Center, patients, parents, clinicians, and psychologists
- Funding: Supported by the American Board of Pediatrics and partner institutions
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