Crosby Lab

Publications

Modi, AC; Beal, SJ; Becker, SP; Boerner, KE; Burton, ET; Chen, D; Crosby, LE; Hilliard, ME; Hood, AM; Kahhan, NA; et al. Editorial: Recommendations on inclusive language and transparent reporting relating to diversity dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. Journal of Pediatric Psychology. 2024; 49:1-12.

Prussien, KV; Crosby, LE; Faust, HL; Barakat, LP; Deatrick, JA; Smith-Whitley, K; Schwartz, LA. An Updated Equitable Model of Readiness for Transition to Adult Care: Content Validation in Young People With Sickle Cell Disease. JAMA Pediatrics. 2024; 178.

Nardo, EV; Parchuri, E; O’Brien, JA; Crosby, L; Porter, J; Palermo, T; Nikolajski, C; Treadwell, M; Hillery, CA; Szigethy, E; et al. The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial. 2023; 1:54.

Hildenbrand, AK; Kidwell, KM; McGrady, ME; Quinn, CT; Crosby, LE; Mara, CA. Feasibility of Electronic Medication Monitoring Among Adolescents and Emerging Adults with Sickle Cell Disease. Patient Preference and Adherence. 2023; 17:3167-3171.

Corley, AM S; Gomes, SM; Martin, KJ; Watkins, S; Lindsey, K; Frenck, RW; Mitchell, MJ; Rule, AR L; Crosby, LE. Evaluation of a Community COVID-19 Vaccine Ambassador Train-the-Trainer Program. Journal of Immigrant Health. 2023; 25:1302-1306.

Hildenbrand, AK; Bear, B; Lewis, AM; Schultz, CL; Alderfer, MA; Crosby, LE. Taking Shared Decision Making from Concept to Clinical Practice: What Do Sickle Cell Healthcare Providers Need?. Blood. 2023; 142:5054.

Shook, LM; Lang, A; King, AA; Smith-Whitley, K; Thompson, AA; Barriteau, CM; Schwartz, L; Mosely, C; Oke, E; Jallow, F; et al. SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know?. Blood. 2023; 142:7199.

Crosby, LE; Lang, A; Mara, C; Quinn, CT; Schultz, CL; Bear, B; Akintobi, TE; Miller, RE; Hildenbrand, AK. Patterns of Nonadherence to Hydroxyurea in Pediatric Sickle Cell Disease. Blood. 2023; 142:7198.

Ding, K; Bear, B; Sood, E; Alderfer, MA; Crosby, LE; Hildenbrand, AK. Disease-Modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports Among Adolescents and Young Adults. Blood. 2023; 142:5059.

Hardy, SJ; Crosby, LE; Porter, JS; Sil, S; Valrie, CR; Jonassaint, CR; Bediako, SM; Andrews, C; Rivera, M; Woolford, T; et al. Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement. Blood. 2023; 142:371.

Cronin, RM; Quaye, N; Liu, X; Landes, K; Crosby, LE; Kassim, AA; Volanakis, EJ; Schnell, PM; DeBaun, MR. A feasibility randomized controlled trial of an mHealth app vs booklets for patient-facing guidelines in adults with SCD. Blood Advances. 2023; 7:6184-6190.

Mitchell, MJ; Riley, C; Crosby, LE. Partnering with Families and Communities to Improve Child Health and Health Equity. Pediatric Clinics of North America. 2023; 70:683-693.

Porter, JS; Heitzer, AM; Crosby, LE; Hankins, JS. Social determinants of health: the next frontier for improving care and outcomes in sickle cell disease. The Lancet Haematology. 2023; 10:e571-e573.

Kamimura-Nishimura, K; Bush, H; Amaya de Lopez, P; Crosby, L; Jacquez, F; Modi, AC; Froehlich, TE. Understanding Barriers and Facilitators of Attention-Deficit/Hyperactivity Disorder Treatment Initiation and Adherence in Black and Latinx Children. Academic Pediatrics. 2023; 23:1175-1186.

Strong, H; Hood, AM; Johnson, Y; Hackworth, R; Reed-Shackelford, M; Ramaswamy, R; Varughese, T; Quinn, CT; Crosby, LE. Using the consolidated framework for implementation research to identify recruitment barriers and targeted strategies for a shared decision-making randomized clinical trial in pediatric sickle cell disease. Clinical Trials. 2023; 20:211-222.

Duncan, A; Risley, S; Combs, A; Lacey, HM; Hamik, E; Fershtman, C; Kneeskern, E; Patel, M; Crosby, L; Hood, AM; et al. School Challenges and Services Related to Executive Functioning for Fully Included Middle Schoolers with Autism. Focus on Autism and Other Developmental Disabilities. 2023; 38:90-100.

Real, FJ; DeBlasio, D; Ollberding, NJ; Sikora, K; Herbst, R; Whitehead, M; Rosen, BL; Meisman, A; Crosby, LE; Klein, MD. Virtual reality informs clinical observation tool. The Clinical Teacher. 2023; 20:e13575.

Williford, DN; Sweenie, R; Ramsey, RR; McGrady, ME; Crosby, LE; Modi, AC. Diversity, Equity, and Inclusion within Pediatric Adherence Science. Journal of Clinical Psychology in Medical Settings. 2023; 30:330-341.

Crosby, LE; Real, FJ; Cunnigham, J; Mitchell, M. Overcoming Vaccine Hesitancy Using Community-Based Efforts. Pediatric Clinics of North America. 2023; 70:359-370.

Williford, DN; McTate, EA; Hood, AM; Reader, SK; Hildenbrand, AK; Smith-Whitley, K; Creary, SE; Thompson, AA; Hackworth, R; Raphael, JL; et al. Psychologists as leaders in equitable science: Applications of antiracism and community participatory strategies in a pediatric behavioral medicine clinical trial. American Psychologist. 2023; 78:107-118.

Real, FJ; Whitehead, M; Ollberding, NJ; Rosen, BL; Meisman, A; Crosby, LE; Klein, MD; Herbst, R. A Virtual Reality Curriculum to Enhance Residents' Behavioral Health Anticipatory Guidance Skills: A Pilot Trial. Academic Pediatrics. 2023; 23:185-192.

Carlson, MM; Bear, B; Alderfer, MA; Schultz, CL; Monroe, DP; Crosby, LE; Hildenbrand, AK. Family-centered communication in pediatric sickle cell disease. Pediatric Blood and Cancer. 2022; 69:e30016.

Shook, LM; Crosby, LE; Whitten-Shurney, W; Drawhorn, L; Yusuf, FI; Farrell, CB; Nelson, SC. A Health Equity Echo for Providers of Children and Adults with Sickle Cell Disease. Blood. 2022; 140:13141-13142.

Crosby, LE; King, AA; Porter, JS; Badawy, SM; Bulgin, D; Hardy, SJ; Arnold, SD; Williford, D; Treadwell, M; Huggins, W; et al. A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols. Blood. 2022; 140:7898-7899.

Hildenbrand, AK; King, AA; Mara, CA; Johnson, Y; Shook, LM; Whitacre, C; Britto, MT; Quinn, CT; Brinkman, W; Hackworth, R; et al. Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia. Blood. 2022; 140:10857-10859.

Hildenbrand, AK; Eckrich, D; Lewis, AM; Schultz, CL; Alderfer, MA; Forrest, CB; Creary, SE; Hulbert, ML; Rao, S; Christakis, DA; et al. Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States. Blood. 2022; 140:7875-7876.

Perazzo, D; Moore, R; Kasparian, NA; Rodts, M; Horowitz-Kraus, T; Crosby, L; Turpin, B; Beck, AF; Hutton, J. Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92:966-978.

Corley, AM S; Gomes, SM; Crosby, LE; Hopkins, M; Cranley, D; Lynch, B; Mitchell, M. Partnering With Faith-Based Organizations to Offer Flu Vaccination and Other Preventive Services. Pediatrics. 2022; 150:e2022056193.

Schwartz, LA; Lewis, AM; Alderfer, MA; Vega, G; Barakat, LP; King-Dowling, S; Psihogios, AM; Canter, KS; Crosby, L; Arasteh, K; et al. COVID-19 Exposure and Family Impact Scales for Adolescents and Young Adults. Journal of Pediatric Psychology. 2022; 47:631-640.

Hood, AM; Crosby, LE; Stotesbury, H; Kölbel, M; Kirkham, FJ. Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease. Frontiers in Neurology. 2022; 13:835823.

Hood, AM; Crosby, LE; Hanson, E; Shook, LM; Lebensburger, JD; Madan-Swain, A; Miller, MM; Trost, Z. The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease. Ethnicity and Health. 2022; 27:833-846.

Harry, O; Langefeld, CD; Crosby, LE; Modi, AC. Factors Associated With Participation in Clinical Trials Among Patients With Lupus. Journal of Clinical Rheumatology: practical reports on rheumatic and musculoskeletal disease. 2022; 28:132-136.

Real, FJ; Hood, AM; Davis, D; Cruse, B; Klein, M; Johnson, Y; McTate, E; Brinkman, WB; Hackworth, R; Hackworth, K; et al. An Immersive Virtual Reality Curriculum for Pediatric Hematology Clinicians on Shared Decision-making for Hydroxyurea in Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology. 2022; 44:e799-e803.

Naved, RT; Kalra, S; Talukder, A; Laterra, A; Nunna, TT; Parvin, K; Al Mamun, M. An Exploration of Social Norms That Restrict Girls' Sexuality and Facilitate Child Marriage in Bangladesh to Inform Policies and Programs. Journal of Adolescent Health. 2022; 70:S17-S21.

Real, FJ; Whitehead, M; Rosen, BL; Meisman, A; Crosby, LE; Klein, MD; Herbst, RB. Assessment of Competency-Based Behavioral Health Anticipatory Guidance Skills Among Pediatric Residents: the Role of Virtual Reality. Journal of Technology in Behavioral Science. 2022; 7:115-124.

Crosby, LE; Joffe, NE; Kidwell, KM; Harry, O; McTate, EA; Nwankwo, C; Hood, AM. Perceptions of a Self-Management Intervention for Adolescents With Sickle Cell Disease. Clinical Practice in Pediatric Psychology. 2022; 10:79-90.

Hood, AM; Nwankwo, C; Walton, A; Mctate, E; Joffe, N; Quinn, CT; Britto, MT; Peugh, J; Mara, CA; Crosby, LE. Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease. Translational Behavioral Medicine. 2021; 11:1823-1831.

Miller, MM; Rumble, DD; Hirsh, AT; Vervoort, T; Crosby, LE; Madan-Swain, A; Lebensburger, J; Hood, AM; Trost, Z. Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease: A Preliminary Investigation. Pain Medicine. 2021; 22:2207-2217.

Hood, AM; Stotesbury, H; Murphy, J; Kölbel, M; Slee, A; Springall, C; Paradis, M; Corral-Frías, NS; Reyes-Aguilar, A; Cuellar Barboza, AB; et al. Attitudes About COVID-19 and Health (ATTACH): Online Survey and Mixed Methods Study. JMIR Mental Health. 2021; 8:e29963.

Herbst, R; Rybak, T; Meisman, A; Whitehead, M; Rosen, B; Crosby, LE; Klein, MD; Real, FJ. A Virtual Reality Resident Training Curriculum on Behavioral Health Anticipatory Guidance: Development and Usability Study. JMIR Pediatrics and Parenting. 2021; 4:e29518.

Cassidy, AR; Butler, SC; Briend, J; Calderon, J; Casey, F; Crosby, LE; Fogel, J; Gauthier, N; Raimondi, C; Marino, BS; et al. Neurodevelopmental and psychosocial interventions for individuals with CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2021; 31:888-899.

Hood, AM; Strong, H; Nwankwo, C; Johnson, Y; Peugh, J; Mara, CA; Shook, LM; Brinkman, WB; Real, FJ; Klein, MD; et al. Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. JMIR Research Protocols. 2021; 10:e27650.

Strong, H; Harry, O; Westcott, E; Kidwell, KM; Couch, SC; Peairs, A; Britto, MT; Crosby, LE. Weight status and health behaviors of adolescents and young adults with sickle cell disease: The emerging risk for obesity. Pediatric Hematology-Oncology (Informa). 2021; 38:265-271.

Mara, CA; Kashikar-Zuck, S; Cunningham, N; Goldschneider, KR; Huang, B; Dampier, C; Sherry, DD; Crosby, L; Farrell Miller, J; Barnett, K; et al. Development and Psychometric Evaluation of the PROMIS Pediatric Pain Intensity Measure in Children and Adolescents with Chronic Pain. Journal of Pain. 2021; 22:48-56.

Harry, O; Crosby, LE; Mara, C; Ting, TV; Huggins, JL; Modi, AC. Feasibility and acceptability of an innovative adherence intervention for young adults with childhood-onset systemic Lupus Erythematosus. Pediatric Rheumatology Online Journal. 2020; 18:36.

Shook, LM; Farrell, CB; Mosley, C; Crosby, LE; Quinn, CT. Leveraging Project Echo Telementoring to Improve Sickle Cell Disease Care in the Midwest: Expanding Provider Education during a Pandemic. Blood. 2020; 136:21.

Hood, AM; Strong, H; Nwankwo, C; Johnson, Y; Mara, CA; Shook, LM; Brinkman, W; Real, FJ; Klein, M; King, AA; et al. Addressing Recruitment Challenges in the Engage-HU Trial in Young Children with Sickle Cell Disease. Blood. 2020; 136:26-27.

Crosby, LE; Hood, A; Kidwell, K; Nwankwo, C; Peugh, J; Strong, H; Quinn, C; Britto, MT. Improving self-management in adolescents with sickle cell disease. Pediatric Blood and Cancer. 2020; 67:e28492.

Valenzuela, J; Crosby, LE; Harrison, RR. Commentary: Reflections on the COVID-19 Pandemic and Health Disparities in Pediatric Psychology. Journal of Pediatric Psychology. 2020; 45:839-841.

Tamm, L; Duncan, A; Vaughn, A; McDade, R; Estell, N; Birnschein, A; Crosby, L. Academic Needs in Middle School: Perspectives of Parents and Youth with Autism. Journal of Autism and Developmental Disorders. 2020; 50:3126-3139.

Crosby, LE; Strong, H; Johnson, A; Mitchell, MJ. The Teen Symposium: Engaging Adolescents and Young Adults With Sickle Cell Disease in Clinical Care and Research. Clinical Practice in Pediatric Psychology. 2020; 8:139-149.

Alberts, NM; Badawy, SM; Hodges, J; Estepp, JH; Nwosu, C; Khan, H; Smeltzer, MP; Homayouni, R; Norell, S; Klesges, L; et al. Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach. JMIR mHealth and uHealth. 2020; 8:e14884.

Plevinsky, JM; Gutierrez-Colina, AM; Carmody, JK; Hommel, KA; Crosby, LE; McGrady, ME; Pai, AL H; Ramsey, RR; Modi, AC. Patient-Reported Outcomes for Pediatric Adherence and Self-Management: A Systematic Review. Journal of Pediatric Psychology. 2020; 45:340-357.

Hood, AM; Quinn, CT; King, CD; Shook, LM; Peugh, JL; Crosby, LE. Vitamin D supplementation and pain-related emergency department visits in children with sickle cell disease. Complementary Therapies in Medicine. 2020; 49:102342.

Goldstein-Leever, A; Peugh, JL; Quinn, CT; Crosby, LE. Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology. 2020; 42:141-144.

Hood, A; McTate, E; Joffe, N; Crosby, L. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. In: Carter BD; Kullgren KA, Ed. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. Issues in Clinical Child Psychology: Springer, Cham.; 2020.

Saulsberry, AC; Hodges, JR; Cole, A; Porter, JS; Hankins, J. Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study. JMIR Pediatrics and Parenting. 2020; 3:e15093.

Kidwell, KM; Treadwell, MJ; Crosby, LE. Pediatric sickle cell disease. Adherence and Self-Management in Pediatric Populations. : Elsevier; Elsevier; 2020.

Kidwell, KM; Treadwell, MJ; Crosby, LE. Chapter 8 Pediatric sickle cell disease. Adherence and Self-Management in Pediatric Populations. : Elsevier; Elsevier; 2020.

Hood, AM; McTate, EA; Joffe, NE; Crosby, LE. Sickle Cell Disease. In: Orkin SH; Nathan DG; Ginsburg D; Look AT; Fisher DE; Lux SE, Ed. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. Philadelphia, PA: Springer Nature; 2020.