Physical activity among adolescents and young adults living with chronic pain and sickle cell disease: a qualitative examination. Journal of Pediatric Psychology. 2025; 50(12):1079-1087.
Partnering With Patients and Families on the Roadmap for Emotional Health. Journal of Participatory Research Methods. 2025; 6(4).
Community Health Worker and Mobile Health Interventions for Quality of Life Among Young Adults With Sickle Cell Disease: A Randomized Clinical Trial. JAMA Network Open. 2025; 8(11):e2543571.
Disease stigma and salivary stress biomarkers among adolescents and young adults with sickle cell disease. Blood. 2025; 146(Supplement 1):2670.
Randomized controlled trial-in-progress of an interdisciplinary treatment program for youth with chronic SCD pain: Integrative strong body and mind training for sickle cell disease (I-STRONG) Blood. 2025; 146(Supplement 1):4753.
Resilience and Mental Health in Southwest Ohio During the COVID-19 Pandemic. Ohio Journal of Public Health. 2025; 7(2).
The Community Health Workers and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care (COMETS) Trial: Protocol for a Randomized Controlled Trial. JMIR Research Protocols. 2025; 14:e69239.
Data Sharing Experience, Guidance, and Resources From the Rare Diseases Clinical Research Network (RDCRN). Clinical and Translational Science. 2025; 18(9):e70340.
Design and Refinement of CyberCellTM, a Virtual Reality Health Education Program for Adolescents and Young Adults with Sickle Cell Disease. Journal of Medical Extended Reality. 2025; 2(1):190-202.
Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review. Journal of Pediatric Psychology. 2025; 50(8):766-781.
How to Improve the Sleep of Hospitalized Pediatric Patients: Family and Staff Focus Groups. Transplantation and Cellular Therapy. 2025; 31(8):586.e1-586.e11.
Usage of a Multipurpose mHealth App Among Adults With Sickle Cell Disease: Randomized Controlled Trial. JMIR Formative Research. 2025; 9:e67906.
THRIVE 2.0: A randomized-controlled trial of an obesity prevention intervention designed for infants in pediatric primary care. Contemporary Clinical Trials Communications. 2025; 45:101488.
Stigma among youth with sickle cell disease in community and medical settings: a scoping review. Journal of Pediatric Psychology. 2025; 50(6):511-524.
Transition to Adult Sickle Cell Disease Care: A Project ECHO Learning Series for Healthcare Professionals. Journal of Sickle Cell Disease. 2025; 2(Supplement_1).
Engaging Parents of Children With Sickle Cell Disease in Shared Decision-Making for Hydroxyurea: The ENGAGE-HU Study. Pediatric Blood and Cancer. 2025; 72(5):e31639.
207 The future of community-engaged research: The development of a graduate certificate in community-engaged research for health. Journal of Clinical and Translational Science. 2025; 9(s1):64-64.
Harnessing Mother's Strengths to THRIVE in Obesity Prevention Efforts: A Qualitative Study. Clinical Practice in Pediatric Psychology. 2025; 13(1):26-36.
Co-designing educational materials about SARS-CoV-2 (COVID-19) vaccines with individuals with sickle cell disease (SCD) and their families. Journal of Sickle Cell Disease. 2025; 2(1).
Acceptability and feasibility of salivary stress research with adolescents and young adults with sickle cell disease. Journal of Sickle Cell Disease. 2025; 2(1).
Increasing Capacity to Address Emotional Health for Children with Chronic Conditions and their Families: Roles for Pediatric Psychologists. Translational Behavioral Medicine. 2025; 15(1).
Implementing a Faculty Diversity, Equity, and Inclusion Strategic Plan Using a Quality Improvement Approach. Journal of Pediatrics. 2025; 276:114374.
Addressing barriers to sustainable academic-community partnerships through Community Health Grants. Journal of Clinical and Translational Science. 2025; 9(1):e66.
Recommended measurement protocols for sickle cell disease in the PhenX toolkit: psychosocial factors and social determinants of health. Journal of Sickle Cell Disease. 2025; 2(1):yoaf019.
Using the translational science benefits model to evaluate the impact of community-engaged programs. Journal of Clinical and Translational Science. 2025; 9(1):e239.
Using Intervention Mapping to Develop a Virtual Reality Intervention to Support COVID-19 Vaccination Among Black Families. Journal of Medical Extended Reality. 2025; 2(1).
Disparities in adolescent controller medication adherence, treatment barriers, and asthma control. Pediatric Pulmonology. 2024; 59(12):3288-3297.
Prospective Biopsychosocial Impacts of Stress and Disease Stigma Among Adolescents and Young Adults with Sickle Cell Disease. Blood. 2024; 144(Supplement 1):3693.
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services – the Comets Study; Results from Patient-Reported Outcomes at 6 Months. Blood. 2024; 144(Supplement 1):1066.
Acceptability and Feasibility of Salivary Stress Research with Adolescents and Young Adults with Sickle Cell Disease. Blood. 2024; 144(Supplement 1):1067.
Empowering Adolescents and Young Adults with Sickle Cell Disease: Development of a Shared Decision-Making Toolkit for Disease-Modifying Therapies. Blood. 2024; 144(Supplement 1):605.
Community-Engaged Research in Psychological Interventions for Pediatric Sickle Cell Disease: A Scoping Review. Blood. 2024; 144(Supplement 1):7524-7524.
Location, Location(s), Location(s+): Moving from Acute to Chronic Pain in SCD Pain in School-Age Children. Blood. 2024; 144(Supplement 1):5360-5360.
Feasibility of a clinic-based, multicomponent hydroxyurea adherence intervention for adolescents and young adults with sickle cell disease. Pediatric Blood and Cancer. 2024; 71(9):e31144.
The pervasive influence of systems of power on transition readiness for adult care in sickle cell disease: A qualitative study. Pediatric Blood and Cancer. 2024; 71(9):e31156.
Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement. JAMA Network Open. 2024; 7(8):e2429443.
Disease-modifying therapies for sickle cell disease: Decisional needs and supports among adolescents and young adults. Pediatric Blood and Cancer. 2024; 71(7):e30999.
The Physician's Calling and Science Promote Health Equity and Outcomes-Reply. JAMA pediatrics. 2024; 178(7):729-730.
Attitudes, Beliefs, and Intention to Receive a COVID-19 Vaccine for Pediatric Patients With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology. 2024; 46(5):e305-e312.
Development of a multimodal geomarker pipeline to assess the impact of social, economic, and environmental factors on pediatric health outcomes. Journal of the American Medical Informatics Association : JAMIA. 2024; 31(7):1471-1478.
A Health Equity ECHO Learning Series for Interdisciplinary Providers. Journal of Sickle Cell Disease. 2024; 1(Supplement_1).
Factors Associated With Racially and Ethnically Diverse Sample of Adolescents, Young Adults, and Parents' Intention to Receive a COVID-19 Vaccine. American Journal of Health Promotion. 2024; 38(5):672-682.
Trajectory of Sleep, Depression, and Quality of Life in Pediatric HSCT Recipients. Transplantation and Cellular Therapy. 2024; 30(6):632.e1-632.e5.
An Updated Equitable Model of Readiness for Transition to Adult Care: Content Validation in Young People With Sickle Cell Disease. JAMA pediatrics. 2024; 178(3):274-282.
Recommendations on Inclusive Language and Transparent Reporting Relating to Diversity Dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. Clinical Practice in Pediatric Psychology. 2024; 12(1):1-15.
Editorial: Recommendations on inclusive language and transparent reporting relating to diversity dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. Journal of Pediatric Psychology. 2024; 49(1):1-12.
A health equity ECHO for clinicians of individuals with SCD. Journal of Sickle Cell Disease. 2024; 1(1):yoae005.
Development of the iManage SCD mobile health application for transition. Health Care Transitions. 2024; 2:100074.
The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial. BMC Digital Health. 2023; 1(1):54.
Evaluation of a Community COVID-19 Vaccine Ambassador Train-the-Trainer Program. Journal of Immigrant and Minority Health. 2023; 25(6):1302-1306.
Patterns of Nonadherence to Hydroxyurea in Pediatric Sickle Cell Disease. Blood. 2023; 142(Supplement 1):7198.
Disease-Modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports Among Adolescents and Young Adults. Blood. 2023; 142(Supplement 1):5059.
Taking Shared Decision Making from Concept to Clinical Practice: What Do Sickle Cell Healthcare Providers Need? Blood. 2023; 142(Supplement 1):5054.
Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement. Blood. 2023; 142(Supplement 1):371.
SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know? Blood. 2023; 142(Supplement 1):7199.
A feasibility randomized controlled trial of an mHealth app vs booklets for patient-facing guidelines in adults with SCD. Blood advances. 2023; 7(20):6184-6190.
Understanding Barriers and Facilitators of Attention-Deficit/Hyperactivity Disorder Treatment Initiation and Adherence in Black and Latinx Children. Academic Pediatrics. 2023; 23(6):1175-1186.
Partnering with Families and Communities to Improve Child Health and Health Equity. Pediatric Clinics of North America. 2023; 70(4):683-693.
Social determinants of health: the next frontier for improving care and outcomes in sickle cell disease. The Lancet Haematology. 2023; 10(8):e571-e573.
School Challenges and Services Related to Executive Functioning for Fully Included Middle Schoolers with Autism. Focus on Autism and Other Developmental Disabilities. 2023; 38(2):90-100.
Diversity, Equity, and Inclusion within Pediatric Adherence Science. Journal of Clinical Psychology in Medical Settings. 2023; 30(2):330-341.
Using the consolidated framework for implementation research to identify recruitment barriers and targeted strategies for a shared decision-making randomized clinical trial in pediatric sickle cell disease. Clinical Trials. 2023; 20(3):211-222.
Virtual reality informs clinical observation tool. Clinical Teacher. 2023; 20(3):e13575.
Overcoming Vaccine Hesitancy Using Community-Based Efforts. Pediatric Clinics of North America. 2023; 70(2):359-370.
A Virtual Reality Curriculum to Enhance Residents' Behavioral Health Anticipatory Guidance Skills: A Pilot Trial. Academic Pediatrics. 2023; 23(1):185-192.
Psychologists as leaders in equitable science: Applications of antiracism and community participatory strategies in a pediatric behavioral medicine clinical trial. American Psychologist. 2023; 78(2):107-118.
Feasibility of Electronic Medication Monitoring Among Adolescents and Emerging Adults with Sickle Cell Disease. Patient Preference and Adherence. 2023; 17:3167-3171.
Family-centered communication in pediatric sickle cell disease. Pediatric Blood and Cancer. 2022; 69(12):e30016.
A Health Equity Echo for Providers of Children and Adults with Sickle Cell Disease. Blood. 2022; 140(Supplement 1):13141-13142.
Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia. Blood. 2022; 140(Supplement 1):10857-10859.
A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols. Blood. 2022; 140(Supplement 1):7898-7899.
Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States. Blood. 2022; 140(Supplement 1):7875-7876.
Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92(4):966-978.
Partnering With Faith-Based Organizations to Offer Flu Vaccination and Other Preventive Services. Pediatrics. 2022; 150(3).
COVID-19 Exposure and Family Impact Scales for Adolescents and Young Adults. Journal of Pediatric Psychology. 2022; 47(6):631-640.
The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease. Ethnicity and Health. 2022; 27(4):833-846.
An Immersive Virtual Reality Curriculum for Pediatric Hematology Clinicians on Shared Decision-making for Hydroxyurea in Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology. 2022; 44(3):e799-e803.
Factors Associated With Participation in Clinical Trials Among Patients With Lupus. Journal of Clinical Rheumatology. 2022; 28(3):132-136.
Perceptions of a Self-Management Intervention for Adolescents With Sickle Cell Disease. Clinical Practice in Pediatric Psychology. 2022; 10(1):79-90.
Assessment of Competency-Based Behavioral Health Anticipatory Guidance Skills Among Pediatric Residents: the Role of Virtual Reality. Journal of Technology in Behavioral Science. 2022; 7(1):115-124.
An Exploration of Social Norms That Restrict Girls' Sexuality and Facilitate Child Marriage in Bangladesh to Inform Policies and Programs. Journal of Adolescent Health. 2022; 70(3S):S17-S21.
Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease. Frontiers in Neurology. 2022; 13:835823.