Disparities in adolescent controller medication adherence, treatment barriers, and asthma control. Pediatric Pulmonology. 2024; 59:3288-3297.
.2024; 1.
. A health equity ECHO for clinicians of individuals with SCD.Feasibility of a clinic-based, multicomponent hydroxyurea adherence intervention for adolescents and young adults with sickle cell disease. Pediatric Blood and Cancer. 2024; 71:e31144.
.The pervasive influence of systems of power on transition readiness for adult care in sickle cell disease: A qualitative study. Pediatric Blood and Cancer. 2024; 71:e31156.
.Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement. JAMA network open. 2024; 7:e2429443.
.Attitudes, Beliefs, and Intention to Receive a COVID-19 Vaccine for Pediatric Patients With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology. 2024; 46:e305-e312.
.The Physician's Calling and Science Promote Health Equity and Outcomes-Reply. JAMA pediatrics. 2024; 178:729-730.
.Development of a multimodal geomarker pipeline to assess the impact of social, economic, and environmental factors on pediatric health outcomes. Journal of the American Medical Informatics Association : JAMIA. 2024; 31:1471-1478.
.Disease-modifying therapies for sickle cell disease: Decisional needs and supports among adolescents and young adults. Pediatric Blood and Cancer. 2024; 71:e30999.
.2024; 1.
. A Health Equity ECHO Learning Series for Interdisciplinary Providers.Trajectory of Sleep, Depression, and Quality of Life in Pediatric HSCT Recipients. Transplantation and Cellular Therapy. 2024; 30:632.e1-632.e5.
.Factors Associated With Racially and Ethnically Diverse Sample of Adolescents, Young Adults, and Parents' Intention to Receive a COVID-19 Vaccine. American Journal of Health Promotion. 2024; 38:672-682.
.An Updated Equitable Model of Readiness for Transition to Adult Care: Content Validation in Young People With Sickle Cell Disease. JAMA pediatrics. 2024; 178:274-282.
.2024; 12:1-15.
. Recommendations on Inclusive Language and Transparent Reporting Relating to Diversity Dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. Clinical Practice in Pediatric Psychology.Editorial: Recommendations on inclusive language and transparent reporting relating to diversity dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. Journal of Pediatric Psychology. 2024; 49:1-12.
.2024; 2:100074.
. Development of the iManage SCD mobile health application for transition.2023; 1:54.
. The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial.Feasibility of Electronic Medication Monitoring Among Adolescents and Emerging Adults with Sickle Cell Disease. Patient Preference and Adherence. 2023; 17:3167-3171.
.Evaluation of a Community COVID-19 Vaccine Ambassador Train-the-Trainer Program. Journal of Immigrant Health. 2023; 25:1302-1306.
.2023; 142:5054.
. Taking Shared Decision Making from Concept to Clinical Practice: What Do Sickle Cell Healthcare Providers Need?. Blood.2023; 142:7199.
. SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know?. Blood.2023; 142:7198.
. Patterns of Nonadherence to Hydroxyurea in Pediatric Sickle Cell Disease. Blood.2023; 142:5059.
. Disease-Modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports Among Adolescents and Young Adults. Blood.2023; 142:371.
. Assessing Psychosocial Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement. Blood.A feasibility randomized controlled trial of an mHealth app vs booklets for patient-facing guidelines in adults with SCD. Blood Advances. 2023; 7:6184-6190.
.Partnering with Families and Communities to Improve Child Health and Health Equity. Pediatric Clinics of North America. 2023; 70:683-693.
.Social determinants of health: the next frontier for improving care and outcomes in sickle cell disease. The Lancet Haematology. 2023; 10:e571-e573.
.Understanding Barriers and Facilitators of Attention-Deficit/Hyperactivity Disorder Treatment Initiation and Adherence in Black and Latinx Children. Academic Pediatrics. 2023; 23:1175-1186.
.Using the consolidated framework for implementation research to identify recruitment barriers and targeted strategies for a shared decision-making randomized clinical trial in pediatric sickle cell disease. Clinical Trials. 2023; 20:211-222.
.School Challenges and Services Related to Executive Functioning for Fully Included Middle Schoolers with Autism. Focus on Autism and Other Developmental Disabilities. 2023; 38:90-100.
.Virtual reality informs clinical observation tool. The Clinical Teacher. 2023; 20:e13575.
.Diversity, Equity, and Inclusion within Pediatric Adherence Science. Journal of Clinical Psychology in Medical Settings. 2023; 30:330-341.
.Overcoming Vaccine Hesitancy Using Community-Based Efforts. Pediatric Clinics of North America. 2023; 70:359-370.
.Psychologists as leaders in equitable science: Applications of antiracism and community participatory strategies in a pediatric behavioral medicine clinical trial. American Psychologist. 2023; 78:107-118.
.A Virtual Reality Curriculum to Enhance Residents' Behavioral Health Anticipatory Guidance Skills: A Pilot Trial. Academic Pediatrics. 2023; 23:185-192.
.Family-centered communication in pediatric sickle cell disease. Pediatric Blood and Cancer. 2022; 69:e30016.
.2022; 140:13141-13142.
. A Health Equity Echo for Providers of Children and Adults with Sickle Cell Disease. Blood.2022; 140:7898-7899.
. A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols. Blood.2022; 140:10857-10859.
. Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia. Blood.2022; 140:7875-7876.
. Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States. Blood.Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92:966-978.
.Partnering With Faith-Based Organizations to Offer Flu Vaccination and Other Preventive Services. Pediatrics. 2022; 150:e2022056193.
.COVID-19 Exposure and Family Impact Scales for Adolescents and Young Adults. Journal of Pediatric Psychology. 2022; 47:631-640.
.Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease. Frontiers in Neurology. 2022; 13:835823.
.The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease. Ethnicity and Health. 2022; 27:833-846.
.Factors Associated With Participation in Clinical Trials Among Patients With Lupus. Journal of Clinical Rheumatology: practical reports on rheumatic and musculoskeletal disease. 2022; 28:132-136.
.An Immersive Virtual Reality Curriculum for Pediatric Hematology Clinicians on Shared Decision-making for Hydroxyurea in Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology. 2022; 44:e799-e803.
.An Exploration of Social Norms That Restrict Girls' Sexuality and Facilitate Child Marriage in Bangladesh to Inform Policies and Programs. Journal of Adolescent Health. 2022; 70:S17-S21.
.2022; 7:115-124.
. Assessment of Competency-Based Behavioral Health Anticipatory Guidance Skills Among Pediatric Residents: the Role of Virtual Reality. Journal of Technology in Behavioral Science.2022; 10:79-90.
. Perceptions of a Self-Management Intervention for Adolescents With Sickle Cell Disease. Clinical Practice in Pediatric Psychology.Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease. Translational Behavioral Medicine. 2021; 11:1823-1831.
.Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease: A Preliminary Investigation. Pain Medicine. 2021; 22:2207-2217.
.Attitudes About COVID-19 and Health (ATTACH): Online Survey and Mixed Methods Study. JMIR Mental Health. 2021; 8:e29963.
.A Virtual Reality Resident Training Curriculum on Behavioral Health Anticipatory Guidance: Development and Usability Study. JMIR Pediatrics and Parenting. 2021; 4:e29518.
.Neurodevelopmental and psychosocial interventions for individuals with CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2021; 31:888-899.
.Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. JMIR Research Protocols. 2021; 10:e27650.
.Weight status and health behaviors of adolescents and young adults with sickle cell disease: The emerging risk for obesity. Pediatric Hematology-Oncology (Informa). 2021; 38:265-271.
.Development and Psychometric Evaluation of the PROMIS Pediatric Pain Intensity Measure in Children and Adolescents with Chronic Pain. Journal of Pain. 2021; 22:48-56.
.Feasibility and acceptability of an innovative adherence intervention for young adults with childhood-onset systemic Lupus Erythematosus. Pediatric Rheumatology Online Journal. 2020; 18:36.
.2020; 136:21.
. Leveraging Project Echo Telementoring to Improve Sickle Cell Disease Care in the Midwest: Expanding Provider Education during a Pandemic. Blood.2020; 136:26-27.
. Addressing Recruitment Challenges in the Engage-HU Trial in Young Children with Sickle Cell Disease. Blood.Improving self-management in adolescents with sickle cell disease. Pediatric Blood and Cancer. 2020; 67:e28492.
.Commentary: Reflections on the COVID-19 Pandemic and Health Disparities in Pediatric Psychology. Journal of Pediatric Psychology. 2020; 45:839-841.
.Academic Needs in Middle School: Perspectives of Parents and Youth with Autism. Journal of Autism and Developmental Disorders. 2020; 50:3126-3139.
.2020; 8:139-149.
. The Teen Symposium: Engaging Adolescents and Young Adults With Sickle Cell Disease in Clinical Care and Research. Clinical Practice in Pediatric Psychology.Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach. JMIR mHealth and uHealth. 2020; 8:e14884.
.Patient-Reported Outcomes for Pediatric Adherence and Self-Management: A Systematic Review. Journal of Pediatric Psychology. 2020; 45:340-357.
.Vitamin D supplementation and pain-related emergency department visits in children with sickle cell disease. Complementary Therapies in Medicine. 2020; 49:102342.
.Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology. 2020; 42:141-144.
.In: Carter BD; Kullgren KA, Ed. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. Issues in Clinical Child Psychology: Springer, Cham.; 2020.
. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings.Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study. JMIR Pediatrics and Parenting. 2020; 3:e15093.
.Elsevier; Elsevier; 2020.
. Pediatric sickle cell disease. Adherence and Self-Management in Pediatric Populations. :Elsevier; Elsevier; 2020.
. Chapter 8 Pediatric sickle cell disease. Adherence and Self-Management in Pediatric Populations. :In: Orkin SH; Nathan DG; Ginsburg D; Look AT; Fisher DE; Lux SE, Ed. Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. Philadelphia, PA: Springer Nature; 2020.
. Sickle Cell Disease.