Immune Deficiencies and Dysregulation
What to Expect

What to Expect Before, During and After Your Visit

Most patients come to the Immune Deficiencies and Dysregulation Program through a referral from their pediatrician. Parents can also reach out to us. Once we receive your child’s information, our team will review all medical notes and test results before your first clinic visit. This process will allow our care manager to schedule the visit with the right specialists for your child.

During your first clinic visit, we’ll be sure to go over any test results and diagnosis information we have. If your child needs to see another specialist, such as a rheumatologist or gastroenterologist, we’ll arrange those appointments to happen on the same day or within a couple of days of your first clinic visit.

Our Care Managers Are Here for You

Along every step of the process, our care managers are here to guide you. You can reach out to them at any point with questions or if you need assistance. You can feel confident in your care journey knowing that our care managers are here to coordinate care and advocate on your behalf.

Diagnosis and Testing

In some cases, your child may need to undergo more tests before we can determine a diagnosis. No matter what condition your child has, our goal is to find answers and the right treatment as soon as possible.

If your child needs more tests, we will work with our in-house Diagnostic Immunology Lab. This state-of-the-art lab offers unique testing capabilities not available at any other children’s hospital in the country.

Our dedicated care managers will work with you to schedule the tests and will follow up with you as soon as the results are available. Because our care managers are also immunology and transplantation nurses, they will be able to answer many of the questions you may have about the test results.

In some cases, we may ask you to visit the clinic again to review the results and treatment options. Other patients may be able to start treatment right away.