Jamie Finds Passion for Sled Hockey Years After Diagnosis of Caudal Regression Syndrome
In Latin, cura personalis means “care of the whole person.”
This is the guiding approach to patient care for pediatric urologist Pramod Reddy, MD, and the team of experts in the Division of Urology at Cincinnati Children’s.
“That’s at the center of what we want for every single patient whom we are privileged to care for,” said Dr. Reddy. “To allow them to live the fullest life possible and not to be defined by their underlying diagnosis.”
For Jamie Benassi, 18, the diagnosis was caudal regression syndrome (sacral agenesis), a rare congenital disorder that prevented the proper development of her lower body.
“All the nerves that go to her bladder, her bowel and her legs don’t work,” explained Dr. Reddy, who began treating Jamie when she was 3 years old.
Discovering Sled Hockey, Finding New Confidence and Independence
A patient at Cincinnati Children’s since she was born, Jamie—along with her parents, Tom and Allison—have never let the condition prevent her from living the fullest life possible.
And for Jamie, her life is quite full. She keeps busy as a high school senior. She plays sled hockey year-round as a member of the local Cincinnati IceBreakers and US Women’s Para Hockey teams.
Over the years, she’s received treatment from the Cincinnati Children’s urology team, as well as experts from the Fetal Care Center, Gynecology and the Colorectal Center. She’s gotten to know her way around Cincinnati Children’s, and now she’s getting to know her way around the United States.