Each child with Hirschsprung disease has unique needs. The multidisciplinary care team will make a treatment plan suited for your child’s condition and overall health. Based on your child’s needs and stage of treatment, the care team may include:
- Specialized pediatric colorectal surgeon
- Dedicated nurse
- Pediatric gastroenterologist specializing in motility (motion of the digestive system)
- Registered dietician
- Pelvic floor physical therapist
- Social worker
- Child life specialist
- Other experts as needed
Almost all children with Hirschsprung disease need a surgery called a “pull-through procedure". This involves taking out the diseased segment of colon. Then the rest of the colon is pulled down and connected to the anus. Sometimes, the surgeon can do this surgery using minimally invasive laparoscopic or robot-assisted surgery. This can mean less pain, less blood loss, smaller scars with faster healing and shorter hospital stays, compared to what patients may have with an “open” or traditional surgery.
Some patients, in particular those with long-segment Hirschsprung disease, may need sodium supplements. A simple urine test is used to check your child’s sodium levels. Your child’s primary care doctor and nutritionist, can prescribe the right oral sodium supplement. Patients who need sodium supplements need to be followed closely for growth and watched closely for dehydration.