Annual Grant Award Dollars

Investigator Title Sponsor ID Dates Amount
Alonso G Zea Vera, MD EEG correlates of frontal cortex mediated control in Tourette Syndrome American Academy of Neurology AAN Grant - Zea Vera 7/1/2020-6/30/2021 $75,000
Cameron W Thomas, MD Neonatal Seizure Registry Developmental Functional EValuation (NSR-DEV) UCSF Human Research Program (National Institutes of Health) National Institues of Health (NIH) 11997sc 3/15/2020-2/28/2021 $41,054
Charles V Vorhees, PhD
Michael T Williams, PhD		 Gene-pesticide interactions and ADHD Ntl Inst of Environmental Hlth Sciences National Institues of Health (NIH) R01ES032270 8/1/2020-7/31/2021 $433,884
Christina Gross, PhD MicroRNA-mediated silencing of the Kv4.2 complex in epilepsy Ntl Inst of Neuro Disorders & Stroke National Institues of Health (NIH) R01NS092705 1/1/2020-12/31/2021 $34,125
Christina Gross, PhD FMR1 Gene Therapy for Fragile X Syndrome FRAXA Research Foundation FRAXA_Gross 6/15/2020-6/15/2021 $45,000
Christina Gross, PhD Functional analysis of the microRNA-induced silencing complex in epilepsy Ntl Inst of Neuro Disorders & Stroke National Institues of Health (NIH) R01NS107453 12/1/2020-11/30/2021 $472,713
Christina Gross, PhD PI3K signaling as a novel disease mechanism-based target to prevent or reduce SUDEP CURE Epilepsy Gross - CURE 10/1/2020-9/30/2021 $125,000
Christina Gross, PhD MicroRNA-mediated correction of dendritic spine abnormalities in a mouse model for FXS via modulation of cytoskeletal proteins National Fragile X Foundation Burwinkle NFXF Award 5/24/2021-8/2/2021 $2,500
Cuixia Tian, MD MDA Care Center Grant Muscular Dystrophy Association 492633 1/1/2020-6/30/2021 $50,000
Cuixia Tian, MD PPMD Grant Award 2019 Parent Project Muscular Dystrophy Tian_PPMD 1/1/2019-12/31/2021 $5,000
Darcy Krueger, MD Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex University of Alabama-Birmingham (Ntl Inst of Neuro Disorders & Stroke) National Institues of Health (NIH) U01NS092595 6/1/2020-5/31/2021 $144,229
Darcy Krueger, MD TSC NATURAL HISTORY DATABASE PROJECT Tuberous Sclerosis Alliance 2013DB18Y3 5/1/2016-12/31/2021 $19,480
Darcy Krueger, MD Developmental Synaptopathies Associated with TSC, PTEN and SHANK3 Mutations Children's Hospital Boston (National Institutes of Health) National Institues of Health (NIH) GENFD0001761815 8/1/2020-7/31/2021 $76,260
Darcy Krueger, MD Developmental Synaptopathies Associated with TSC, PTEN and SHANK3 Mutations Children's Hospital Boston (National Institutes of Health) National Institues of Health (NIH) 81199.CCHMC.01.PTEN 8/1/2020-7/31/2021 $77,232
Darcy Krueger, MD 2019CRN01 TSA Study Coordinator Support for RDCRN Children's Hospital Boston (Tuberous Sclerosis Alliance) 2019CRN01 10/1/2019-9/30/2021 $16,062
Donald L Gilbert, MD GABAergic Sensorimotor Dysfunction in Tourette Syndrome Kennedy Krieger Research Institute (Ntl Inst of Neuro Disorders & Stroke) National Institues of Health (NIH) R01NS096207 4/1/2020-3/31/2022 $180,629
Donald L Gilbert, MD Collaborative TIC Genomics 2018 National Institute of Mental Health National Institues of Health (NIH) 1R01MH115962-01 4/1/2021-3/31/2022 $119,250
Donald L Gilbert, MD 1/2 AMPA III National Institute of Mental Health National Institues of Health (NIH) 2R01MH095014-06 7/1/2020-6/30/2021 $415,119
Hisako Fujiwara Predicting epilepsy surgery outcome with MEG functional connectivity and graph theory American Epilepsy Society AES - FUJIWARA 7/1/2020-12/31/2021 $50,000
John Michael Taylor International Pediatric Stroke Study (IPSS) The Hospital for Sick Children Taylor, John - Sick 5/5/2020-12/31/2025 $3,774
Lubov Timchenko, PhD GSK3 beta study in patients with Myotonic Dystrophy 1 Ntl Inst of Arth & Musculo & Skin Dis National Institues of Health (NIH) R01AR073379 1/1/2021-12/31/2021 $387,837
Lubov Timchenko, PhD CNS in Congenital DM1: Pathogenesis and Therapeutic Opportunities Ntl Inst of Neuro Disorders & Stroke National Institues of Health (NIH) R01NS115662 2/1/2021-1/31/2022 $359,491
Ravindra Arya, MD Diagnostic validity and safety of high-gamma langu Johns Hopkins University (National Institutes of Health) National Institues of Health (NIH) R01NS115929 6/1/2020-2/28/2021 $415,814
Tracy A Glauser, MD Cincinnati Neuroscience Clinical Trials Research Center University of Cincinnati (National Institutes of Health) National Institues of Health (NIH) CinciNEXT Renewal 7/1/2020-6/30/2021 $151,007
Tracy A Glauser, MD Instrumenting the Delivery System for a Genomics Research Information Commons Children's Hospital Boston (National Institutes of Health) National Institues of Health (NIH) GENFD0001706578 7/1/2020-6/30/2021 $278,250
Total Annual Grant Award Dollars $3,978,710

Annual Industry Award Dollars

Investigator Industry Sponsor Amount
Andrew D Hershey, MD, PhD Upsher-Smith $73,811
Andrew D Hershey, MD, PhD Biohaven Pharmaceuticals Inc. $67,677
Andrew D Hershey, MD, PhD Biohaven Pharmaceuticals Inc. $193,129
Cameron W Thomas, MD Children's Hospital Boston (UCB Pharma, Inc.) $11,083
Christina Gross, PhD BridgeBio Services $166,061
Cuixia Tian, MD Catabasis Pharmaceuticals Inc $42,231
Cuixia Tian, MD Sarepta Therapeutics Headquarters $15,498
Cuixia Tian, MD Capricor ATherapeutics, Inc. $30,456
Cuixia Tian, MD FibroGen Inc. $143,159
Darcy Krueger, MD Marinus Pharmaceuticals Inc $335,686
Darcy Krueger, MD Tavanta Therapeutics $33,775
Darcy Krueger, MD GW Pharmaceuticals plc $55,497
Donald L Gilbert, MD Emalex Biosciences, Inc $179,186
Shannon Michelle Standridge MD, MPH GW Pharmaceuticals plc $59,084
Shannon Michelle Standridge MD, MPH Acadia Pharmaceuticals $139,456
Total Annual Industry Award Dollars $1,545,789