Frequently Asked Questions

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The Cleft and Craniofacial Center team sees children and young adults with abnormalities of the skull, face, jaws and mouth. Most of these conditions occur at birth. Some of the most common conditions evaluated include:

Individuals referred to the Cleft and Craniofacial Center are scheduled in the appropriate craniofacial clinic by the center coordinator. Most children are evaluated through the Craniofacial team, which represents all of our multiple specialties.

Individuals followed by the Center are usually evaluated once a year. Patients are seen individually by team members, who recommend a coordinated, comprehensive treatment plan.

A report of the team’s recommendations is sent to you and your child’s healthcare providers. Our coordinator reviews the report with you and assists in any recommended follow-up.

Infants are followed until they are 3 years old. Yearly team evaluations usually begin at age 3 or 4 and continue until treatment is complete.

The Cleft and Craniofacial team works with most of our patients affected with cleft lip and / or cleft palate, Pierre Robin sequence, hemifacial microsomia, Crouzon disease and other related craniofacial conditions.

The Infant and Toddler Genetics Craniofacial Clinic is where newborns, infants and toddlers are evaluated. They are seen by a geneticist and advanced practice registered nurse. This clinic ensures that each child receives appropriate medical and dental management. The team closely monitors growth and development, following these children on a regular basis until they are 3 to 4 years old. They are then referred to the Craniofacial team for yearly evaluations until treatment is complete.

The Velopharyngeal Insufficiency / Incompetence (VPI) Clinic evaluates children with velopharyngeal dysfunction (nasal sounding speech) but without a history of cleft palate. A speech pathologist, otolaryngologist and geneticist staff this clinic.

The Orthognathic and Oral Surgery Clinic is held once a month. An oral surgeon and orthodontist evaluate older children who have significant tooth, jaw and mouth abnormalities. These children often require both orthodontic treatment and jaw surgery to correct skeletal misalignment of the teeth and jaws.

The Cleft and Craniofacial Center’s recommendations for evaluation and treatment of craniofacial conditions may include reconstructive surgery, speech / language therapy, a genetics evaluation or orthodontic treatment.

When families live too far away to have all of their child’s healthcare provided at Cincinnati Children’s, the Center can serve as a consultant to local healthcare providers and continue to evaluate the child yearly to update the treatment plan.

Pediatricians and primary surgeons refer patients to the Cleft and Craniofacial Center. We also accepts referrals from other healthcare professionals, hospitals, school representatives and parents.

For more information, contact our administrator, Iris Sageser, at or 513-636-4539. Callers outside the Cincinnati area may call toll-free, 1-800-344-2462,  ext. 6-4539.