What to Expect at Your First Appointment at the Cincinnati Center for Eosinophilic Disorders
When your child is first diagnosed with an eosinophilic disorder, you may feel both fear and isolation. Fear because there is a lot still unknown or misunderstood about the diagnosis, and isolation because it is a rare, often misunderstood condition.
As a patient of the Cincinnati Center for Eosinophilic Disorders (CCED) at Cincinnati Children’s, your child will have access to the latest research and innovations in treatment, as well as resources to help your child and your whole family live life to the fullest. This access includes new clinical trials and studies that can help your child, along with many other children with the same diagnosis. Your first step is contacting our intake team to start the process of making an appointment.
Making an Appointment at the Cincinnati Center for Eosinophilic Disorders
The CCED only treats patients with a confirmed diagnosis of an eosinophilic disorder. We confirm this information by reviewing your child’s medical records, pathology reports and select pathology slides. Our office can help you gather the correct information our team will need before your child’s first appointment.
Your child’s initial evaluation will take about four days, depending on their needs and medical history. These evaluations take place during the day, and your child will not be checked in to the hospital overnight.
Our providers offer services at multiple locations across Greater Cincinnati. Furthermore, our Concierge Services can help you arrange travel, hotels, and local dining. Families traveling from out of town also have access to the Ronald McDonald House, located next to our Burnet Campus, for overnight stays, meals, and activities.
For more information about the CCED or to schedule an appointment, contact us.
Before Your Appointment
Before your appointment, we will provide an itinerary and instructions on how to prepare for your child’s personalized visit. Instructions may include whether your child needs to avoid or stop medications for procedures or testing. Our office will determine which specialists should meet with you and your child for the first evaluation, and we’ll schedule those appointments. For example, your schedule may include a bone density test or a meeting with a gastroenterologist for an endoscopy. You may also meet with a psychologist for a family consultation, or an allergist for allergy and immunology testing and education. Researchers and dietitians also might play a role in your child’s initial evaluation.
On the Day of Your Visit to the Center for Eosinophilic Disorders
Arriving at Your Appointment
The CCED is located on Cincinnati Children’s Burnet Campus. The address is 3333 Burnet Ave., Cincinnati, Ohio 45229.
Please plan to arrive about 30 minutes early to find parking, walk to the clinic, and register your child for their first appointment.
During Your Appointment
Our team will review your child’s medical records to eliminate the need for tests or exams they’ve already had. However, your child’s condition may have changed since they last had specific tests. If that’s the case, your child’s itinerary may show a test that needs to be repeated during your first visit with us.
Your child’s personalized itinerary will list what specialists will meet with you and your child for the first evaluation, and the schedule of those appointments. Our team will complete the exams and provide assessments through discussion with you and your child, including recommendations for disease management and treatment. Your care team also will offer advice on quality-of-life issues, strategies for dealing with school and social events, and educational materials for your child’s school and caregivers.
Medication Management, Simplified
Managing eosinophilic disorders often means navigating complex medications and insurance processes. Our team helps with prior authorizations, pharmacy coordination, shipping, and ongoing monitoring for therapies such as Dupixent and other maintenance medications.
After Your Visit to the Center for Eosinophilic Disorders
Your care team at CCED is invested in your child’s long-term care and well-being. We monitor eosinophilic disorders as we do other chronic conditions. For eosinophilic disorders, we usually see patients at least once a year. Input from CCED gastroenterologists, allergists, nutritionists, social workers and clinical support staff will guide your child’s treatment plan. To make sure your child achieves the best outcomes, we schedule follow-up visits to make any necessary adjustments to your child’s care as they grow and learn to manage their condition.
