Lung Transplant
Support and Resources

Support and Resources

The Lung Transplant Program at Cincinnati Children's Hospital provides additional resources for you and your family, including information about online support groups, financial assistance opportunities and a collection of organ transplant websites (local and national).

United Network for Organ Sharing (UNOS) 
UNOS is a non-profit organization which coordinates U.S. organ transplant activities. The UNOS website contains information and statistics about organ transplantation.

Centers for Medicare & Medicaid Services (CMS) 
CMS is an agency within the U.S. Department of Health & Human Services responsible for administration of several key federal health care programs.

LifeCenter is the local organ and tissue recovery agency serving Cincinnati Children’s Hospital and the greater Cincinnati area for over 30 years

American Lung Association 
The American Lung Association is the oldest voluntary health organization in the United States, with a National Office and constituent and affiliate associations around the country. Founded in 1904 to fight tuberculosis, the American Lung Association today fights lung disease in all its forms.

Children's Interstitial and Diffuse Lung Disease Foundation 
The mission of Children's Interstitial and Diffuse Lung Disease Foundation, a not-for-profit organization, is to accelerate research to cure all forms of Children’s Interstitial and Diffuse Lung Disease (chILD) and to provide compassionate support, education and hope to children and families affected by these life-altering diseases.

Cystic Fibrosis Foundation 
The mission of the Cystic Fibrosis Foundation (CFF) is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

National Organizations for Rare Disorders 
The National Organizations for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them.

Pulmonary Hypertension Association 
The mission of Pulmonary Hypertension Association (PHA) is to seek a cure, and to provide hope, support and education, and to promote awareness and to advocate for the pulmonary hypertension community.

American Society of Minority Health and Transplant Professionals 
The mission of American Society of Minority Health and Transplant Professionals (ASMHTP) is to promote organ and tissue donation and transplant among minorities, and serve in a national advisory capacity for research and education on these and other health-related issues.

American Society of Transplantation 
The American Society of Transplantation (AST) is an organization of more than 2,100 transplant professionals dedicated to research, education, advocacy and patient care in transplantation.

Association of Organ Procurement Organizations 
The Association of Organ Procurement Organizations (AOPO) is the non-profit organization recognized as the national representative of 58 federally designated organ procurement organizations (OPOs), serving more than 300 million Americans.

Donate Life America 
Donate Life America is a not-for-profit alliance of organizations and local coalitions across the United States, dedicated to inspiring all people to donate life through organ and tissue donation.

Children’s Organ Transplant Association (COTA) 
Children’s Organ Transplant Association (COTA) provides fundraising assistance for children needing life-saving transplants and promotes organ, marrow and tissue donation.

International Society for Heart and Lung Transplant (ISHLT) 
The International Society for Heart and Lung Transplant (ISHLT) is a not-for-profit organization dedicated to the advancement of the science and treatment of end-stage heart and lung disease.

National Foundation for Transplants (NFT) 
The National Foundation for Transplants (NFT) provides healthcare support, advocacy and financial services to transplant candidates and recipients nationwide. They assist with transplant patient costs not covered by insurance.

Needy Meds 
The Needy Meds website is designed to provide information about patient assistance programs, which provide no-cost prescription medications to eligible participants.

National Minority Organ and Tissue Transplant Education Program (MOTTEP) 
The mission of National Minority Organ and Tissue Transplant Education Program (MOTTEP) is to decrease the number and rate of ethnic minority Americans needing organ and tissue transplants. MOTTEP will achieve its mission by implementing a national information and education campaign that emphasizes both prevention and intervention strategies.

National Organizations of Social Security Claimants’ Representatives (NOSSCR) 
National Organizations of Social Security Claimants’ Representatives (NOSSCR) is committed to providing the highest representation and to advocate on behalf of persons who are seeking Social Security and Supplemental Security Income.

National Transplant Assistance Fund (NTAF) 
The National Transplant Assistance Fund (NTAF) mission is to help raise funds for transplant and spinal cord injury patients by providing compassionate support, education and expertise to patients, families and communities.

Second Wing Lung Transplant Associations, Inc. 
Second Wind Lung Transplant Associations, Inc. seeks to improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.

Transplant Living 
Transplant Living provides information about what to expect to pre- and post-transplant, including stories from donor and recipient families.

Transplant Recipients International Organization, Incorporated (TRIO) 
Transplant Recipients International Organization, Incorporated (TRIO) provides transplantation and organ donation information and resources for transplant candidates, recipients, donors and their families.

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