Most babies with bronchopulmonary dysplasia (BPD) are diagnosed within the first four weeks of birth. At our BPD Center, we typically start seeing infants when they are in the newborn intensive care unit (NICU). However, we also treat babies and children of an older age who are referred here for care.
When your baby is cared for by our team, you will be in close contact with our BPD Center liaison, an advanced practice nurse, who will be your main contact with our multidisciplinary care team. Our entire team works to understand the subtle changes in each patient regarding their lung, airway and heart function, and make recommendations regarding therapies, ventilator management and potential surgical interventions. As your main contact, your liaison will ensure you are always up to date regarding your child’s care plan and will assist with answering any of your questions.
Babies with BPD stay in the NICU for a wide range of time. Some may stay in the NICU for just a few weeks, and others will stay for months. We aim to help educate parents and families about their child’s illness, so you can learn what to expect about your baby’s length of stay in the NICU, as well as what it takes to care for a baby with a respiratory illness.
Babies with bronchopulmonary dysplasia improve gradually over time. Some recover lung function that is close to normal, while others have long-term lung damage requiring significant medical care over their lifetime.
Some babies go home with a home ventilator. We have care managers who will help you learn about your child’s respiratory care, including home ventilators, so you feel comfortable caring for them after they are discharged.
Here’s what to expect when your child returns for care to our BPD Center after being discharged: