Services & Specialties
Neurofibromatosis

Get expert care for neurofibromatosis from a nationally recognized team focused on your child’s long-term health and quality of life.

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Second Opinion

Helping Families Navigate Neurofibromatosis with Expert, Coordinated Care

A neurofibromatosis diagnosis can feel confusing and overwhelming. You may have questions about tumors, symptoms, treatment options and what the future may hold for your child. At Cincinnati Children’s Comprehensive Neurofibromatosis Center, we help families find answers, support and a clear care plan.

Our specialists treat children and teens with neurofibromatosis 1 (NF1), segmental NF, neurofibromatosis 2 related schwannomatosis (NF2-SWN), and other types of schwannomatosis. We bring together experts from oncology, neurology, genetics, ophthalmology, orthopedic, neurosurgery and many others to support every part of your child’s care.

Families from across the region and around the country trust our team for advanced treatment options, second opinions and access to clinical trials. As a Children’s Tumor Foundation Comprehensive NF Center, we combine leading research with compassionate, family-centered care.

Why Choose Cincinnati Children’s Neurofibromatosis Program?

Team-based care brings specialists together to create one coordinated treatment plan for your child
Nationally recognized experts lead care for children with complex and rare neurofibromatosis conditions
Clinical trials and innovative treatments give eligible patients access to emerging therapies and research opportunities
Whole-child support helps address physical, emotional, developmental and long-term health needs

Neurofibromatosis Expertise, Treatments and Family Support

Recognized Neurofibromatosis Specialists

Our program includes nationally and internationally recognized experts in neurofibromatosis care and research. Cincinnati Children’s is also recognized by the Children’s Tumor Foundation as a Comprehensive NF Center through the NF Clinic Network.

Each year, our team cares for about 500 patients with neurofibromatosis and related conditions. Families come to us for expert evaluations, long-term care and trusted second opinions.

Advanced Research and Clinical Trials

Our specialists lead and participate in national clinical trials focused on neurofibromatosis and schwannomatosis. These studies help us improve treatment options and better understand how these conditions affect children over time.

Because Cincinnati Children’s is a leading pediatric research hospital, eligible patients may have access to innovative therapies that are not widely available elsewhere.

Coordinated Care from Many Specialists

Neurofibromatosis can affect many parts of a child’s body. That is why team-based care is central to our program.

Your child’s care team may include specialists in oncology, neurology, genetics, ophthalmology, orthopaedics, neuropsychology, pain management, plastic surgery, rehabilitation medicine and neurosurgery. These experts work together to create a unified care plan that supports your child’s changing needs.

Support for the Whole Child and Family

We focus on more than treating tumors or symptoms. Our team supports your child’s development, daily function, emotional well-being and long-term quality of life.

Families also work with a clinic nurse and care manager who helps coordinate follow-up visits, answer questions and connect families with helpful resources throughout their care journey.

Expert Second Opinions for Neurofibromatosis

Many patients come to Cincinnati Children’s Neurofibromatosis Program for a second opinion. Families often seek our expertise when facing complex diagnoses, new symptoms or questions about treatment options.

Our specialists provide detailed evaluations and clear recommendations to help families feel confident about next steps and long-term care decisions.

Treatments and Services